Stigma and Discrimination

Commentary: How to Address China's AIDS Epidemic

Tue, 02/01/2011

China's national response to the AIDS epidemic will go farther if it addresses the evolving nature of women's vulnerability to HIV and how HIV-related stigma complicates an already complex situation.

It was early December, the day after World AIDS Day, 2010. I was back in Beijing for the first time in 23 years, standing outside the entrance to the Great Hall of the People on Tiananmen Square. I had an official invitation in hand to a high-level consultation on China’s national response to the AIDS epidemic, which is increasingly affecting women and girls.  

My mind toggled back to my last visit to China in 1987, when the government had just decreed mandatory AIDS testing for foreign residents. At that point in the epidemic, Chinese public health authorities said the source of the HIV threat was outside of China and they relied on China’s strong heteronormative culture to protect its citizens from sexual transmission of AIDS. The government figured they could contain the threat by focusing on foreigners and a very small number of gay Chinese men – a highly stigmatized group in China, as elsewhere. Back then, AIDS was viewed predominantly as a “gay man’s disease.”

Fast forward to December 2010. Reports released by the Chinese government and UNAIDS on World AIDS Day indicated that HIV and AIDS in China have evolved much like other epidemics in Asia, transforming from one concentrated among groups most at risk for HIV, such as injection drug users, to a broader epidemic among the general population. Sexual transmission is now the primary mode of HIV infection in China: As of 2009, heterosexual transmission accounted for 42 percent of new cases and homosexual transmission for 32 percent. And emerging data show that patterns of risk are becoming increasingly complex, in part due to the rapidly escalating diffusion of HIV among men who have sex with men as well as with women. At the Great Hall event, government officials acknowledged the need to understand and address the complexity of China’s national epidemic.

So where does China go from here? As Chinese public health experts develop their national AIDS strategy, they may want to pay close attention to two related elements: the evolving nature of women’s vulnerability to HIV and the impact of stigma and discrimination in complicating an already complex situation.

Focusing on women is essential. Recent data indicate that a growing proportion of Chinese women are being infected with HIV through sexual transmission, from 30 percent in 2000 to 74 percent in 2009. HIV transmission within marriage now poses a credible threat to many Chinese women, particularly those wedded to men most at risk for HIV, such as migrant workers, men who have sex with men and injection drug users. Public health authorities’ efforts will go farther if they understand the role of power relationships between women and men, and how that can contribute to women’s vulnerability to HIV. They may also want to consider that social dynamics and sexual practices are fluid from setting to setting, and interact differently under different environmental conditions. This creates a multitude of “local” epidemics within China’s national epidemic – each requiring a well-tailored response. 

This, I believe, includes working with civil society to reduce stigmatization of men who have sex with men and increase services available to them. As I talked with people leading AIDS programming for corporations, multi-laterals and foundations, it became apparent that very little is known about this community of men in China. Service providers are perplexed about how to reach this population and their sexual partners, both male and female, with information and services. We’ve studied HIV-related stigma extensively at ICRW, and our research in Cambodia and across the world may be useful in designing effective programs.

It’s critical that China’s next national AIDS plan, which is currently under development, lays the groundwork for an AIDS-free society. And I’m confident that the country has the ability to do so through policy, research and programs that tackle the underlying causes of women’s and men’s vulnerability to HIV.

Sarah Degnan Kambou is president of ICRW.

Standing Against Stigma

Fri, 01/07/2011
POZ

POZ features the Stigma Action Network, which seeks best practices for reducing HIV-related stigma, and quotes ICRW’s Anne Stangl, behavioral scientist and stigma specialist.

Kirsten Stoebenau

Image Place Holder
Kirsten
Stoebenau
Gender and Population Specialist
Bio: 

Kirsten Stoebenau is an International Center for Research on Women (ICRW) gender and population specialist who focuses on women’s reproductive and sexual health.

A global health researcher trained in social demography, Stoebenau brings more than a decade of experience analyzing the social determinants of women’s reproductive and sexual health. Prior to joining ICRW in 2010, Stoebenau was a postdoctoral fellow at Canada’s University of Ottawa, where she led a mixed-method study of the social and economic roots of transactional sex among youth in two regions of Madagascar. She also has worked as a research assistant in the department of population and family health sciences at the Johns Hopkins Bloomberg School of Public Health.

Stoebenau served in the Peace Corps in Madagascar, where she developed, coordinated and supervised a project to nutritionally enrich a traditional highland Malagasy dish.

Expertise: 

HIV and AIDS, Population and Reproductive Health, Stigma and Discrimination, Emerging Issues

Languages Spoken: 

English (fluent), Malagasy (fluent), French (proficient)

Education: 

Stoebenau holds a doctorate in population and family health sciences from Johns Hopkins Bloomberg School of Public Health and a bachelor’s in anthropology from Emory University.

Anne Stangl

Anne
Stangl
Senior Behavioral Scientist
Bio: 

Anne Stangl is a senior behavioral scientist at the International Center for Research on Women (ICRW). In this role, Stangl develops strategies and coordinates efforts to reduce HIV- and AIDS-related stigma and discrimination.

Stangl brings more than seven years of international public health experience in Africa and Asia with a focus on stigma, qualitative and quantitative research methods, research design, statistical analysis and monitoring and evaluation. Stangl’s research centers on HIV- and AIDS-related stigma, particularly as it relates to HIV prevention, care and treatment. Prior to joining ICRW in 2007, Stangl designed and conducted studies on HIV prevention and stigma for the Centers for Disease Control and Prevention and Tulane University School of Public Health.

Stangl also served as a Peace Corps volunteer in Zimbabwe, incorporating lessons on HIV and AIDS awareness and prevention into high school curriculum.

Expertise: 

HIV and AIDS; Stigma and Discrimination

Languages Spoken: 

English (native), Spanish (basic)

Education: 

Stangl holds a doctorate and master’s degree in public health from Tulane University School of Public Health, and a bachelor’s in biology and English from James Madison University.

Fighting Stigma in South Asia

Small Investments Yield Strong Results
Thu, 07/29/2010

Community-led efforts to reduce HIV-related stigma and discrimination can achieve a great deal with relatively small investments, according to a new report by the International Center for Research on Women (ICRW) and the World Bank.

Community-led efforts to reduce HIV-related stigma and discrimination can achieve a great deal with relatively small investments, according to a new report by the International Center for Research on Women (ICRW) and the World Bank.

The report, “Tackling HIV-Related Stigma and Discrimination in South Asia,” synthesizes lessons from a World Bank regional competition to find innovative, grassroots programs that reduce stigma and discrimination. The grants program totaled $1 million and funded 26 projects in Afghanistan, Bangladesh, India, Nepal, Pakistan and Sri Lanka; the maximum grant size was $40,000. ICRW’s team of experts collaborated with grantees to design and evaluate the programs, and analyze their outcomes.

Grantees embraced many approaches to address stigma, ranging from training for radio journalists to food and catering services for people living with HIV. Each effort was led by or engaged key populations at risk, including sex workers, injecting drug users, men who have sex with men and transgender communities. In South Asia, the prevalence of HIV is low overall but the epidemic is growing among high-risk groups, partly due to the failure to respond to HIV stigma and discrimination.

One intervention, Project Baduku in Bangalore, India, led a series of more than 200 campaigns to sensitize the public about the issues female sex workers and people living with HIV face and to encourage change in societal attitudes and biases. As a result, sex workers living with HIV reported that they felt more confident after participating in the campaigns.

 “Being a part of Project Baduku gave me the mental stamina I needed to resist stigma and discrimination and deal with my disease,” one woman said. “It made me strong. When you are better mentally, you are better physically.” Additionally, the percentage of sex workers living with HIV who regularly sought care and treatment at antiretroviral therapy centers increased from 30 percent before the project to 60 percent after.

“These results suggest that minimal investments in stigma reduction can maximize investments in HIV prevention, treatment and care,” said Anne Stangl, behavioral scientist and stigma specialist at ICRW and lead author of the report. “This report provides lessons for AIDS funders and community groups to replicate and scale up similar initiatives.”

Sandy Won is ICRW's strategic communications manager.


More on the World Bank’s South Asia Region Development Marketplace »

AIDS Stigma Drives HIV in India: World Bank Study

Thu, 07/22/2010
The Times of India

The Times of India reports on a World Bank regional competition to tackle prejudice about HIV and AIDS in South Asia. A new publication, Tackling HIV-Related Stigma and Discrimination in South Asia, written by the International Center for Research on Women (ICRW) and the World Bank summarizes the findings.

Establishing a Global Knowledge Network on HIV Stigma and Discrimination Reduction

Establishing a Global Knowledge Network on HIV Stigma and Discrimination Reduction

Anne Stangl, Laura Brady, Traci Eckhaus and Laura Nyblade
2009

Stigma remains a seriously neglected issue in the global response to HIV despite more than a decade of efforts to understand the causes of HIV stigma, raise awareness about its harmful effects, and develop programs and strategies to reduce it.

In November 2008, M.A.C AIDS Fund and the International Center for Research on Women (ICRW) convened a meeting that brought together nearly 60 experts from the program, research, policy, advocacy and donor sectors to identify why HIV stigma has not gained sufficient ground in the global HIV response and what can be done to turn that around.

At the meeting, participants prioritized six key actions to galvanize support for scaling-up stigma-reduction efforts globally. Foremost among the action items was the creation of a global knowledge network. This report summarizes findings of the background research conducted on existing health and development networks to identify options for organizing the structure and key functions of the stigma knowledge network.

(324.18 KB)

We encourage the use and dissemination of our publications for non-commercial, educational purposes. Portions may be reproduced with acknowledgment to the International Center for Research on Women (ICRW). For questions, please contact publications@icrw.org; or (202) 797-0007.

Terms and Conditions »

Global Network to Tackle HIV Stigma and Discrimination

Stigma Action Network Aims to Take Solutions to Scale
Mon, 07/19/2010

HIV stigma and discrimination is a problem with proven solutions. A new global alliance, the Stigma Action Network, aims to take these solutions to scale.

HIV stigma and discrimination is a problem with proven solutions. A new global alliance, the Stigma Action Network, aims to take these solutions to scale.

One of the best kept secrets of the global AIDS response is the significant body of knowledge and tools available to reduce HIV-related stigma and discrimination. These strategies have been shown to successfully address some of the structural, individual and community-level drivers that cause and perpetuate stigma and discrimination.

But these successes are few and far between. Without expanding stigma-reduction strategies, current efforts related to HIV prevention, treatment and care continue to be undermined.

To address this gap, a group of organizations, including the International Center for Research on Women (ICRW), on July 21 launched the Stigma Action Network while in Vienna for the XVIII International AIDS Conference. The network aims to maximize the effectiveness of the global AIDS response by developing a coordinated, scaled-up response to reducing stigma and discrimination.

Network members believe such focused attention on decreasing HIV-related stigma is long overdue.

Each day, more than 6,800 people become infected with HIV, and more than 5,700 die from HIV-related causes. Worldwide research confirms that stigma and discrimination fuel the epidemic by inhibiting people’s access to HIV testing and counseling. Stigma also affects people's ability to disclose their status to partners and others, access timely entry into care and adhere to treatment regimens.

Many who are on the frontlines of HIV have witnessed the devastating effects of stigma. These groups and individuals attempt to tackle the issue, often working in isolation and reinventing what others already have learned. Best practices are not consolidated or widely disseminated, and few collaborate or share ideas. As a result, stigma remains a seriously neglected issue.

The Stigma Action Network strives to transform this landscape. The network will fulfill three key functions:

  • Disseminate information and facilitate knowledge sharing
  • Foster collaboration between individuals and groups for the purposes of research, programming and advocacy
  • Set or influence research, program and policy agendas through improved communication and coordination of its members

A steering committee will lead the network. It includes ICRW as secretariat, Colectivo Sol, EngenderHealth, Futures Group, the International HIV/AIDS Alliance and The Communications Hub. The network is supported by the M.A.C. AIDS Fund, The Elton John AIDS Foundation and UNAIDS.

Sandy Won is ICRW's strategic communications manager.


Individuals or organizations interested in joining the Stigma Action Network and participate in the global movement can send a blank email to join-hivstigmanetwork@eforums.healthdev.org.

Monitoring and Evaluation Assistance for the World Bank Development Marketplace

The World Bank’s Development Marketplace program in South Asia funds innovative approaches to reduce stigma and discrimination associated with HIV and AIDS. Since few successful stigma programs have been monitored and well documented, ICRW worked with the World Bank to record lessons learned and promising approaches from the 26 grant recipients of the Development Marketplace program.

ICRW worked intensively with grantees to help them develop a monitoring and evaluation plan for their projects. Throughout the grantees’ implementation phase, we provided tailored technical guidance on program design, effective messaging, and measurement and evaluation tools. ICRW then led a global monitoring and evaluation workshop in New Delhi to further strengthen the capacity of the grantees. We also encouraged them to reflect on the implementation process and discuss challenges and potential solutions.

In the report, Tackling HIV-Related Stigma and Discrimination in South Asia, published by the World Bank, the research team summarizes monitoring, evaluation and case study data, revealing that a number of strategies were particularly effective in raising awareness about stigma and discrimination, and shifting, albeit slowly, attitudes, norms and behaviors.

Duration: 
2008 - 2010
Location(s): 
Bangladesh
Location(s): 
Nepal
Location(s): 
India
Location(s): 
Afghanistan
Location(s): 
Pakistan
Location(s): 
Sri Lanka

Tackling HIV Related Stigma and Discrimination in South Asia

Tackling HIV Related Stigma and Discrimination in South Asia
Lessons Learned from the 2008 Development Marketplace

Anne Stangl, Dara Carr, Laura Brady, Traci Eckhaus, Mariam Claeson, Laura Nyblade
2010

Research suggests that involving marginalized populations, including sex workers, injection drug users, men who have sex with men and transgender communities, in the HIV response is the best hope for achieving the community action and social change necessary to stem the epidemic. In 2008, the World Bank’s South Asia Region Development Marketplace launched a small grants program to fund stigma-reduction activities implemented by organizations led by and for marginalized groups. ICRW provided technical support to grantees in program design, monitoring and evaluation.

This report describes key findings and lessons learned from the program, which included 26 grantees from six countries in South Asia. Also included are six case studies, which offer a more in-depth look at the lessons and challenges of intervening against stigma and discrimination.

(618.2 KB)

We encourage the use and dissemination of our publications for non-commercial, educational purposes. Portions may be reproduced with acknowledgment to the International Center for Research on Women (ICRW). For questions, please contact publications@icrw.org; or (202) 797-0007.

Terms and Conditions »

Syndicate content